Our stay this time was short....woo-hoo! We arrived early Monday morning and Kade was hooked up to the EEG monitor. I was dreading this as it involves over an hour of holding still, pushing on his head, etc but he did great once he had some fun new toys to play with. As most of you know his medication makes it really hard for him to hold still, so I didn't know how he was going to handle being stuck in bed. My prayers were answered and he was so much more mellow and did so well. I can't say enough great things about Phoenix Children's Hospital...the staff was so wonderful, and Kade once again left the hospital with a bag full of fun new toys and prizes.
One of the things we did to keep him entertained was let him take pictures. Below is the hospital room from his point of view:
Tuesday we met with the Dr. and he reviewed his EEG results. It was good and bad news, but mostly good. The bad news is Kade had four seizures while he was sleeping, and some electrigraphical seizures. The good news is the seizures were small, his electrographical seizures are down 95% from when we left in January, and his development has not been affected. Since his development is not affected, we are sticking with the same current medications and doses, and hopefully things will either continue to improve or stay the same. Thanks for all the well wishes, it really means a lot!! x0x0
9 comments:
I am so glad that he has improved. Blessings from heaven that's what little boys are so when we hear good news like this we rejoice.
He is a little sweetheart! I love it when we give our kids cameras to take pictures from "their point of view".
They are so precious these kids of ours. How did we get to be so lucky?
Thank you for the continued updates. We miss you guys.
Love the pictures and the good news. We will keep you in our prayers.
Looks like this trip went a lot better than the last. I am so glad you only had to stay for a night. Kade looks like he is actually liking it there.
I'm so glad that things are better and I hope they continue to. Take care!
YAYYYY!!!! That is the greatest news. I'm so glad you're home and that Kade did well. Hooray!
Good news! I have to agree that PCH is a great hospital. Brycie was flown there when she overdosed on adult extra strength Tylenol at 17 months. She was there 3 or 4 days and they were so good with her.
What a sweet sweet boy you have there. I hope and pray that things continue to improve for you all.
He is too sweet...I cannot even imagine what you guys are going through. Know that our thoughts and prayers are with you guys....sending lots of love your way!xxoo
Prayers have been answered somewhat. GREAT news! Bless little Kade; he has had to go thru a lot and now seems to know what is expected of him on these visits. Loved the camera photos from Kade; interesting what the child sees vs us adults. Continued prayers for him and your whole family.
Love,
Jim and Bobbi
I'm so glad to know that Kade is doing better. Cute pictures and I think he is a budding photographer! I think the picture of you and Kade is great, you look so good! It's a great picture of you!
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